-No, the doctor has to give an adequate image, of tranquility.That is, sometimes there are situations in the operating room or in the paritor...You have to give yourself a minute, breathe, change your clothes, clean and talk to the family.You have to take care of that image because you are going to stay in the retina.In an emergency situation, in a located guard, you arrive at the hospital and enter the door and give the parents an initial information, but even there you would have to save the forms and explain why you arrive like this dressed: «They just called me, let's attend it...".
-Have it been very difficult to report in the pandemic?
-Yes, I have been talking to families for three or four months, with the mother or father looking at us alone in the fault of the mask.Without that important part that is the expression.You saw if they were worried or happy just for their gaze.I miss the face of people.
-TO book chapter you dedicate it to Google.Because?
-I do wondering if Dr. Google is our enemy, at a time when I all, we also look for information on the network.Doctors What we have to contribute is whether the information that the family seeks finding it in reliable sources, in scientific societies, professionals of professionals...If they report it to us, we have to value any information that they bring and give them another that they are looking for.
-TOre you finding a lot of rest?
-No no.Because if I'm going to buy a car or an appliance, I would also be the first to look at everything before going to the store. Yo entiendo que en la sociedad en la que vivimos la gente busque información, pero luego tiene que haber la confianza para que ellos te digan: «De esto que hemos leído, ¿qué opinión tiene usted?".You can serve as a filter and weigh the information that the family brings.
-To deal with premature babies, the information is different from another that occurs in other specialties?We talk about the possible loss of a child.
-Well, in all health problems there may be delicate situations, but ours is a very special plot.It is the beginning of life, everyone is programmed to have children without problems, and what we attend are children with problems, sometimes to be born early, and other times they are health problems manifested at the time of birth.Sometimes everything goes well and suddenly there is a malformation that has not been detected because some are prenatically undetectable, or a metabolic problem arises that does not face the face until the child begins to feed...
-Tú pones el foco más allá del bebé, dices en el título del libro: «La familia es el paciente".Is it missing?
-There are to understand neonatal medicine as an integral medicine, of the whole family.But I would transfer it to the whole medical field, all patients have their family around, and the family suffers, wants to know.We owe them too.
-You also speak of legal aspects, how to do the interview and even the autopsy, you touch several sticks within the broad information.
-I tried to approach most of the scenarios that a pediatric and neonatologist can find in the development of your activity, there may be some scenario that I do not play...
-For example?
-We leave it for a second edition [laughs].
-TO well -made bad news is less painful?
-I wouldn't say it's less painful, but it doesn't become more painful.If not perceived with pain is that there is something that is not working in that family.The family suffers, you are to comfort and relieve that suffering.But bad news, given with good information, makes all the phases through which you must pass to overcome the process.In the end, families, even after giving them bad news as the death of a child, thank how you have treated them.They realize that they were informed well.That is very satisfactory.
-Informing is also giving very good news.Does the way change?
-Many begin being bad news and end up being excellent.There is a graduation, a favorable evolution of events.What needs to be is a bit consistent: what cannot be is white one day and the other black, there must be an information process.
-Doid you?
-No no.We do not dose the information.When a family looks me in the eye I tell you precisely that, do not think that I know more about what I am telling you.This is very important.We must inform honestly and with all the knowledge at that time.The family has to be sure that everything that is being transmitted is the information we have.If the family looks at you with distrust, we are failing.
-If you know that a child is going to die, what do you tell the parents?
-You have to tell you that this situation has no way out.TOs hard as it seems, you tell you that the child is probably died, yes, we use that verb.The less euphemisms you use, the better, if not, parents believe it can be a permanent situation.You have to talk to you naturally about death, farewell and duel.
-TOrely what you usually do is save lives!
-Yes, in fact every time a great premature one goes high we graduate it with a diploma of ‘small hero’ or ‘small heroine’, they are put a birrete and we celebrate that this goal is achieved.Most people who go through a neonatal unit have serious problems that will be solved.
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