Thrombophilia, a claim to the health system and Teo's miracle

The pilgrimage to save a life

As happens with many women in the country, Rocío had difficulties receiving treatment: "When I was diagnosed, the social work did not recognize the medication my doctor prescribed, some injectables. I remember it was the end of the month and I had no money. When I went to find out the price, the ten injectables were worth 15 thousand pesos"

After the refusal by the social work, the Paraná native had to opt for other alternatives to start her treatment. "At that time I didn't have a credit card and I had to ask my mom for hers." In addition, his doctor sympathized with his situation and provided him with some injections for the first month because "I had to put them in right then and there. There was no nurse available and I gave them myself." "We used the following month's bonus to buy the injections, we saved and received help from our relatives," said Federico, his partner and Teo's father.

At this time, Rocío was going through her fifth pregnancy: "The baby already had a beating heart, there was life. We had experienced three losses. Knowing that she did not have the medication and that she could lose this baby was the most painful thing, because it was necessary for him to be born". Due to the lack of money, she received the idea of ​​selling raffles to pay for the treatment and she took her case to court due to the constant refusal of IOSPER to cover the injections. "The lawyer Marcos Pita referred me to a colleague who deals with the cases of this entity, who did not charge me anything. When you seek help to support an economic expense, thinking about a lawyer is spending money. Luckily, an appeal came out to my favor that forced the provider to cover the medication in its entirety".

Thanks to the different raffles and sales that she made, Rocío managed to cover her medication during and after her pregnancy, as well as the different tests that she had to do even after Teo, her son, came into the world. In such a delicate state, she did not stop fighting for her rights and that of her son: "It was cumbersome to go door to door with a giant belly to fight so that the medication is not delayed. Iosper made me present the same papers every month to receive the medication even though they already had all the data, my diagnosis, my injections and the amparo appeal". Despite the fact that the social work promised the medication for ten to 15 days, the mother, being in an advanced stage of her pregnancy, had to go to claim due to the lack of compliance: "I am not going to forgive them for that medication because I am going to donate it and that is what I did , I was fighting it".

Accompaniment and empathy

There are many women in the country who are going through this same complex and delicate situation. "A thrombophilia group contacted me when they saw my conditions and the things I shared, because we told everyone our story to ask for help, ideas, someone to help us get the medication. Through word of mouth, this group facilitated injections," Rocío recalled. "You get to know different people who communicate with you and have the same thing. The number of women who have the condition after losing pregnancies is impressive, which is no small thing. It is a physical and emotional process that affects family ties when it is so desired and expected," he reflected.

The women's group works on a mutual aid system between women and Rocío was not far behind and expressed her solidarity with women in her situation: "all those boxes that arrived after Teo's birth, due to the delay in Iosper, They were donated to a girl from Rosario so that her pregnancy could prosper and today she is seven months pregnant," she recalled very proudly, "it was just like a chain of favors."

Make reality visible

Although Rocío had a "happy ending", she decided to show the reality behind Teo's birth with a photo session that she shared on her social networks: "After all the ups and downs in the process of being a mother for the second time... .Today I can scream with all my soul... "Yes, you can", reads the post available on his Facebook profile.

"In one of the groups that I am in, they invite us to upload a photo of our baby with the injections for those who managed to be mothers to support those who are going through their grief and help them heal so they can try again. Also it is for those who are in the process and show them that it can be done," explained the teacher from Paraná. In the text, she also thanked the solidarity of those people who helped her and showed their solidarity.

The story of this teacher is just one of the thousands that countless women pass through in the country. Although there is article 23 of the National Law No. 27,611 on Attention and Comprehensive Health Care during Pregnancy and Early Childhood, obras sociales do not cover the analysis that diagnoses the condition, even though it allows access to diagnostic studies. free diagnoses and treatments, both in public services and with social work.

Regarding the future, "I would love for the social works to comply, but it goes further, it is an early diagnosis because, if it does not touch you, you will not find out. Social networks are essential to find out and know that You're alone and you're not the only one, anyone can touch us," reflected Teo's mother. "Thrombophilia should be a generalized study for everyone. That is why the law is also important, for those of us who want to be mothers we can be without winning the lottery or working five jobs to pay for the medication: I sold used clothes, furniture, sweet cakes, my Husband did overtime at work or raffles. I hope someone one day can make thrombophilia law possible."